Assessment of the Quality of Life of Family Caregivers of Hemodialysis Patients with Chronic Kidney Disease in Yogyakarta

Authors

  • Pinasti Utami Department of Pharmacology and Clinical Pharmacy, School of Pharmacy, Faculty of Medicine and Health Sciences, Universitas Muhammadiyah Yogyakarta, Indonesia, 55183 Author
  • Binar Sukma Cahyarni School of Pharmacy, Faculty of Medicine and Health Sciences, Universitas Muhammadiyah Yogyakarta, Indonesia, 55183 Author
  • Miranda Miranda School of Pharmacy, Faculty of Medicine and Health Sciences, Universitas Muhammadiyah Yogyakarta, Indonesia, 55183 Author
  • Bangunawati Rahajeng Department of Pharmacology and Clinical Pharmacy, School of Pharmacy, Faculty of Medicine and Health Sciences, Universitas Muhammadiyah Yogyakarta, Indonesia, 55183 Author
  • Triana Arum Kusumaningtyas School of Pharmacy, Faculty of Medicine and Health Sciences, Universitas Muhammadiyah Yogyakarta, Indonesia, 55183 Author

DOI:

https://doi.org/10.24071/jpsc.v23i1.1088

Keywords:

Family caregiver, hemodialysis, renal failure, quality of life, WHOQOL-BREF

Abstract

Chronic Kidney Disease (CKD) is a leading cause of mortality[A1.1][A1.2] in worldwide. In Indonesia, 713,783 cases were [A2.1][A2.2]reported, with 2,850 patients requiring hemodialysis, significantly impacting patients and requiring long-term care from family caregivers.[A3.1][A3.2] Despite the crucial role of family caregivers in supporting treatment adherence and patient well-being, studies examining caregivers’ quality of life in Indonesia, particularly in the Special Region of Yogyakarta, remain limited. This study assessed caregivers’ quality of life and its association with demographic factors in four hospitals, including three private and one public hospital located in Sleman, Yogyakarta City, and Bantul Regency. A cross-sectional multicenter study was conducted in four hospitals, involving 292 family caregivers. Data were collected using demographic questionnaires and WHOQOL-BREF, and analyzed with descriptive statistics and correlation tests. Most caregivers were 46–65 years old, female, had high school education, were not working, and were spouses of patients. Care duration ranged 13–36 months, with daily care exceeding 12 hours; patients underwent hemodialysis twice weekly. Quality of life was generally good in psychological and environmental domains, while physical and social domains ranged from moderate to good. [A4.1][A4.2]Significant correlations with caregivers’ quality of life were found in specific hospitals, including caregiver–family closeness (r = 0.294; p = 0.014), employment status (r = −0.256; p = 0.032), education level (r = 0.269; p = 0.021), and caregiving duration (r = −0.253; p = 0.025). These findings indicate that caregiver quality of life is influenced by both demographic and relational factors, highlighting the need for targeted support to maintain caregiver well-being and sustain patient care.

References

Alim, Y. C., Anggraini, M. T., & Noviasari, N. A. (2023). Analisis faktor yang berhubungan dengan beban family caregiver dalam mengasuh pasien skizofrenia. Jurnal Keperawatan Jiwa, 11(2), 361–368.

Alnasser, H. A., BinMuneif, Y. A., Alrsheed, S. F., Alqahtani, S. A., Alhaisoni, F. E., Algadheb, H. A., & Alateeq, N. M. (2025). Quality of Life Among Caregivers of Patients Undergoing Hemodialysis Versus Peritoneal Dialysis in Saudi Arabia: A Cross-Sectional Study. Cureus. https://doi.org/10.7759/cureus.77834

Bello, A. K., Okpechi, I. G., Osman, M. A., Cho, Y., Htay, H., Jha, V., Wainstein, M., & Johnson, D. W. (2022). Epidemiology of haemodialysis outcomes. Nature Reviews Nephrology, 18(6), 378–395. https://doi.org/10.1038/s41581-022-00542-7

Farzi, S., Farzi, S., Moladoost, A., Ehsani, M., Shahriari, M., & Moieni, M. (2019). Caring burden and quality of life of family caregivers in patients undergoing hemodialysis: A descriptive-analytic study. International Journal of Community Based Nursing and Midwifery, 7(2), 89–96. https://doi.org/10.30476/IJCBNM.2019.44888.88

Geglorian, T. R., Handayani, F., & Erawati, M. (2022). Faktor Yang Mempengaruhi Mekanisme Koping Caregiver Pasien Ginjal Tahap Akhir Dengan Hemodialisa. Syntax Literate; Jurnal Ilmiah Indonesia, 7(5), 6344–6353.

Joseph, S. J., Bhandari, S. S., Dutta, S., Khatri, D., & Upadhyay, A. (2021). Assessing burden and its determinants in caregivers of chronic kidney disease patients undergoing haemodialysis. Open Journal of Psychiatry & Allied Sciences, 12(2), 96–100. https://doi.org/10.5958/2394-2061.2021.00017.3

Kementerian Kesehatan Republik Indonesia. (2018). Laporan Nasional Riset Kesehatan Dasar 2018. In Kementrian kesehatan RI. https://dinkes.kalbarprov.go.id/wp-content/uploads/2019/03/Laporan-Riskesdas-2018-Nasional.pdf

Kovesdy, C. P. (2022). Epidemiology of chronic kidney disease: an update 2022. Kidney International Supplements, 12(1), 7–11. https://doi.org/10.1016/j.kisu.2021.11.003

Livana, P. H., & Wardani, I. Y. (2019). Karakteristik keluarga pasien hemodialisis yang mengalami stres. Jurnal Ners Widya Husada Semarang, 6(3), 73–78. http://journal.uwhs.ac.id/index.php/jners/article/viewFile/318/324

Nasution, F., Darmansyah, I. M., Larasati, D. S., & Anggeria, E. (2022). Pengaruh Foot Massage terhadap Penurunan Tekanan Darah dan Stres Psikologis pada Keluarga Pasien Gagal Ginjal Kronik. JUMANTIK (Jurnal Ilmiah Penelitian Kesehatan), 7(1), 37. https://doi.org/10.30829/jumantik.v7i1.10881

Nimah, L., Nursalam, N., Wahyudi, A. S., & Mariyanti, H. (2024). Quality of Life of Family Caregivers of Patients Undergoing Dialysis: A Literature Review. SAGE Open Nursing, 10. https://doi.org/10.1177/23779608241240124

Orbayinah, S., Hikmah, N., Arviani, S. D., Hidayah, F. N., Soularto, D. S., Cahyaningsih, I., ... & Utami, P. (2024). BersaMaDia App for Improving Quality of Life in Type 2 Diabetes Mellitus Patients at Asri Medical Center Muhammadiyah Hospital Yogyakarta. In BIO Web of Conferences (Vol. 135, p. 02002). EDP Sciences.

Panthi, R. C., Dhungana, M., Poudel, D., Joshi, K. R., Bista, A., & Kayastha, G. K. (2023). Quality of life of patients with chronic kidney disease under maintenance hemodialysis and their caregivers: A cross-sectional study. Cureus, 15(10).

Rahmi, U., & Putri, R. (2021). JAKHKJ Vol. 7, No. 2, 2021 KUALITAS HIDUP ( QUALITY OF LIFE ) CAREGIVER PASIEN DEMENSIA. Jakhkj, 7(2), 35–39. http://ejurnal.husadakaryajaya.ac.id/index.php/JAKHKJ/article/download/166/130

Ramasamy, S., Rathore, V., Agrawal, V., & Galhotra, A. (2025). Burden level and quality of life of caregivers of hemodialysis patient’s in central India: a mixed-method cross-sectional study. BMC Research Notes, 18(1), 291. https://doi.org/10.1186/s13104-025-07374-1

Remonte Jr, E., De Leon, D. F., & Gutierrez, S. (2024). WCN24-613 QUALITY OF LIFE AND BURDEN OF CARE OF FAMILY CAREGIVERS OF FILIPINO PATIENTS ON HEMODIALYSIS AND PERITONEAL DIALYSIS. Kidney International Reports, 9(4), S54–S55.

Sulasmi, N. W., Jayanti, D. M. A. D., & Laksmi, I. G. A. P. S. (2023). Gambaran kecemasan keluarga merawat pasien dengan skizofrenia pada masa pandemi covid 19. Jurnal Ilmiah Cakrawarti, 6(1), 165–173. https://doi.org/10.47532/jic.v6i1.814

Sumah, D. F. (2020). Kecerdasan Spiritual Berkorelasi dengan Tingkat Kecemasan Pasien Gagal Ginjal Kronik yang Menjalani Hemodialisa di Ruang Hemodialisa RSUD dr. M. HAULUSSY Ambon. JURNAL BIOSAINSTEK, 2(01). https://doi.org/10.52046/biosainstek.v2i01.352

Utami, P., Hadning, I., Ristiono, H., Puspitasari, A., Novita, Z. D., Afifah, E. F., ... & Ikawati, Z. (2025). AKUDEMEN App: A digital health education intervention to enhance dementia awareness and elderly care at Griya Lansia Banguntapan. In BIO Web of Conferences (Vol. 203, p. 03016). EDP Sciences.

Vina, V. V. (2021). ANALISIS KUALITAS HIDUP KELUARGA YANG MERAWAT PASIEN GAGAL GINJAL KRONIK DENGAN HEMODIALISIS: ANALISIS KUALITAS HIDUP KELUARGA YANG MERAWAT PASIEN GAGAL GINJAL KRONIK DENGAN HEMODIALISIS. Jurnal Keperawatan’Aisyiyah, 8(2), 179–187.

Zhang, Y. H., Cheng, Y., Wang, Z., Yang, T., Lv, W., & Huang, H. (2021). Factors influencing depression in primary caregivers of patients with dementia in China: A cross-sectional study. Geriatric Nursing (New York, N.Y.), 42(3), 734–739. https://doi.org/10.1016/J.GERINURSE.2021.03.017

Zygouri, I., Cowdell, F., Ploumis, A., Gouva, M., & Mantzoukas, S. (2021). Gendered experiences of providing informal care for older people: a systematic review and thematic synthesis. BMC Health Services Research, 21(1), 1–15. https://doi.org/10.1186/s12913-021-06736-2

Downloads

Published

2026-06-12

Issue

Section

Articles

How to Cite

Assessment of the Quality of Life of Family Caregivers of Hemodialysis Patients with Chronic Kidney Disease in Yogyakarta. (2026). Jurnal Farmasi Sains Dan Komunitas (Journal of Pharmaceutical Sciences and Community), 23(1), 160-166. https://doi.org/10.24071/jpsc.v23i1.1088